Just a reminder that the latest CFS Advisory Committee meeting is taking place today and tomorrow in Washington, DC. The meeting just started at noon today and will continue through 5 pm today and then again tomorrow from 9 am to 5 pm.
You can watch the meeting live at this link.
Click the link on this page to see the agenda. Public comment periods are today at 1:30 pm and again tomorrow at 11 am.
They keep track of how many people watch from home, so this is an easy way to let your voice be heard!
I have had Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) since March 2002. Both of my sons also got ME/CFS at ages 6 and 10. Our younger son fully recovered after 10 years of mild illness. Our older son still has ME/CFS and also has Lyme disease plus two other tick infections. This blog is about how our family lives with chronic illness, with a focus on improving our conditions and enjoying our lives in spite of these challenges.
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